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My Friend has Coeliac Disease... Any tips?

(11 posts)
  • Started 5 years ago by Aleeve
  • Latest reply from Aleeve
  • Topic Viewed 1040 times

Aleeve
Aleeve
Posts: 2818

She's allergic to Wheat, barley, rye and maybe oats

any tips? I feel really sorry for her :(

Posted 5 years ago
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Lighthouse
Lighthouse
Posts: 13598

What is her current diet?

Posted 5 years ago
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techgranny
techgranny
Posts: 1443

Hi Aleeve,

It's all about the gluten. Hope these help:
http://digestive.niddk.nih.gov.....bs/celiac/
http://www.csaceliacs.org/celiac_treatment.php

Posted 5 years ago
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elpaelpa
elpaelpa
Posts: 717

Aleeve,I wish your friend luck.They found I had Celiac Sprue while looking for an ulcer (which they also found).Special foods can be bought (such as bread substitute) which can pass for the real thing but are very expensive.While I never had bad symptoms,I found that just giving up beer made me feel better.I gave up the diet a long time ago (except the beer).

Posted 5 years ago
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Aleeve
Aleeve
Posts: 2818

Thank you, I'll pass these links on to her!

LH - diet, well, she was used to pasta, bread etc etc!

Only got diagnosed on Friday

Will be very difficult for her I think, apparently the gluten-free substitutes are disgusting

Posted 5 years ago
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Lighthouse
Lighthouse
Posts: 13598

A gluten free diet will be difficult. I think it really depends on how bad she is (see elpaelpa above)
Please give her my best wishes :)

Posted 5 years ago
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Aleeve
Aleeve
Posts: 2818

Ok :)

Well, the doctor told her she would never be able to eat wheat or the others again

:/

Although, when I around the age of 5, I had been on a dairy-free diet for about 3 years, and I came off that, so maybe...

She's waiting for the cure! (at the moment I understand there isn't one?)

Posted 5 years ago
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elpaelpa
elpaelpa
Posts: 717

Aleeve-My understanding is that the only cure is diet.As I stated,giving up all the hops,barley and grain in beer helped me and in just a short time!Supposedly, she will see some positives fairly quickly if she goes on the diet!I think I stated it wrongly above-I continue to not inbibe and feel better!Because sprue inflames the stomach the biggest risk is probably cancer.Some people slowly waste away because nutrients aren't injested into the body but that can be slowed down with suppliments and vitamins in cases where it's not too advanced.I believe my Dr. claimed people do improve with diet but yes, it's a life long thing.

Posted 5 years ago
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techgranny
techgranny
Posts: 1443

Aleeve, diet is the only cure, but your friend need not worry. You're young and that's the easiest time to change your lives forever! There's always wine:), potatoes:), corn:), rice:), . . a whole world of tasty food! Here are links to a support group and recipe site:

http://www.glutenfreeforum.com.....pid=187247
http://www.gicare.com/pated/edtgs06.htm

I know your friend will be just fine:)

Posted 5 years ago
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elpaelpa
elpaelpa
Posts: 717

Aleeve-Your friend will be fine!I'm 59 and they only found out I had it by accident-2 yrs ago.Many people go through life never knowing they're afflicted!Even just cutting back on certain foods will help.

Posted 5 years ago
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Aleeve
Aleeve
Posts: 2818

Ok
Thanks guys you've been really really helpful
:)

Posted 5 years ago
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